I was finally released from the hospital Thursday. I was getting okay sleep but my parents were getting none. They decided it would be best for my healing process if they were well rested too. I had planned to stay a bit longer to benefit from the rehab services, but Phoenix Children's Hospital (PCH) wasn't really doing much as far as that goes. I really need to work on my swallowing and the speech therapist rarely showed up. Since as an outpatient I'd have scheduled appointments, we thought the physical therapists, occupational therapists and speech therapists might actually show up for those and maybe I'd get more rehab time in than when I was actually at the hospital... we'll find out.

When I got home Thursday I slept all afternoon and even into the next morning... I guess I needed more sleep than I thought! Then I felt like doing some simple errands with my daddy. My mommy was hesitant to let me go, but my immune system isn't compromised yet and I wore a mask every where to avoid picking up other people's germs. I LOVE toys and mommy and daddy bought me more over the weekend. I'm getting too many really.

I love being around my sister and my little dog Buggy again too.

Oh yeah, I also had my first radiation appointment Friday afternoon. It went well, but it looks like they'll be putting me under every time since I get really scared and wiggle too much. That's okay, the anesthesia is not as strong as I thought it was going to be. I wake up pretty quickly after the event. Also, my mommy has me on five bolus feeds during the day now. No more night feeds. Since I'm being fed through a tube, we really have to coordinate my feedings with my whole schedule. I'm tolerating a lot in one sitting though, so I'm lucky. Some kids get sick off of the formula feeds and have to do long feeds which means they are tied up to the feeding machine all day. Now I have six weeks of radiation at 6:30 am Mon-Fri. Can't wait till it's over! I will have a four-week break and then I'll start chemo.

Well, until next time...