I don't really want to start off the final chemo post by complaining, but that's what I'm going to do! Got here at eight and chemo is finally going to go up at 12:30. New sloooow record. Ah well, can't all be a breeze when curing cancer.
Anywho, Ethan's been doing pretty good. ANC today is 1300 which seems kinda low at this point, but he has had eight rounds already. He's been a little shaky, eyes are red, and bruising a little. But, he's been scooting around the house and playing quite a bit with Brynn.
We're hoping this admit goes smoothly and he starts feeling really good in just a few weeks.
It's been really hot and it never rains... I thought I left AZ. Looks like we're moving to WA next March. Ryan will complete his internship at Fort Lewis. I'm excited - mountains, trees, rivers, ocean, it has got it all! I keep telling Ryan I'm taking the kids camping with or without him.
I'll update with any changes, but as it stands we should be out of this joint by tomorrow night. Then, it is time to gorge ourselves on cake and ice cream. I'm sure Ethan will be up for it - NOT!
- Love to all
About Me
- Ethan Black
- Hi, I am an adorable, blonde, blue-eyed young man. I had Medulloblastoma - cancer. I had a successful resection of my brain tumor, completed six weeks of radiation, 15 months of chemo, and countless surgeries and therapies as the result of treatment effects. These entries journal much of my treatment and progress. I have come a long, long way and I am doing awesome today! Feel free to read and share my story.
Thursday, June 30, 2011
Friday, June 10, 2011
Doing great...
Knock on wood. It's hard for me to say things like this, because then it seems like something happens... However, we went in Monday and counts were holding so we went in again on Thursday. Although his ANC was still low around 300, he seemed to be on the climb back up. Cutting his cisplatin in half sure has helped this round. I can't remember a treatment wherein he only needed one blood and platelet transfusion and didn't have an unplanned stay in the hospital. PRAY it stays that way. If so, we have till June 30th before he goes in for his last round of cyclophosphamide.
He's definitely still weak but not very nauseous and in good spirits. Like I mentioned before, he dropped weight, but I was relying on him too much and doing less feeds than I should have been. When he's not fresh off the chemo he does a great job eating on his own. He'll probably put the weight back on in the next couple weeks.
So there you have it. Almost through it!!!
Love to all.
He's definitely still weak but not very nauseous and in good spirits. Like I mentioned before, he dropped weight, but I was relying on him too much and doing less feeds than I should have been. When he's not fresh off the chemo he does a great job eating on his own. He'll probably put the weight back on in the next couple weeks.
So there you have it. Almost through it!!!
Love to all.
Monday, June 6, 2011
Ear infection
We came in last Tuesday and his ear was infected, but the meds for it have worked great. He was also bordering low counts so we returned last Thursday and got blood and platelets. Plus, he got his vincristine again last week.
Over the weekend he did fairly well. Seems a little weak and tired, but not terribly. He has vomited a little. He's also cut weight. We're in the clinic right now and I was surprised to hear he is only 43 lbs today. Back to three cans instead of two in addition to what he eats on his own.
All else is well. It's very hot around here these days. It's a lot like AZ. It's frustrating because you have to wait till evening before you can get the kids outdoors. However, there is always a nice breeze that helps relieve some of the heat.
If counts are good today, we won't have to come back for three weeks. We are just waiting to hear.
Hope you all had a great weekend and have a wonderful week. <3
Over the weekend he did fairly well. Seems a little weak and tired, but not terribly. He has vomited a little. He's also cut weight. We're in the clinic right now and I was surprised to hear he is only 43 lbs today. Back to three cans instead of two in addition to what he eats on his own.
All else is well. It's very hot around here these days. It's a lot like AZ. It's frustrating because you have to wait till evening before you can get the kids outdoors. However, there is always a nice breeze that helps relieve some of the heat.
If counts are good today, we won't have to come back for three weeks. We are just waiting to hear.
Hope you all had a great weekend and have a wonderful week. <3
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