Went in for the hearing test last week. He did lose a little more hearing in both ears, but nothing drastic. I was actually hoping for some improvement, but we'll take a small decline versus a large one. Next Friday he has his pre-op appt. for his eye surgery the following Monday. He also finally has a neurology appoint schedule for Oct., in addition to, his next MRI on Oct. 20th. It'll be a busy month.
This past Saturday Ethan's right ear started draining a great deal, so we started ear drops on Sunday and confirmed that it was the right thing to do in clinic by Monday morning. They decided not to give an oral and to see if the drops would clear it up - it worked. Stopped draining yesterday. He had no pain or fevers so we weren't too worried. He still has a tube in that ear.
We talked about his g-tube being removed when they take his port out - six months post last round of chemo. That will be really nice, but he has to be eating enough on his own first, of course. He's getting there, slowly but surely.
In all, things are progressing fairly smoothly. It is so nice NOT getting chemo!!!
Love to all.
About Me
- Ethan Black
- Hi, I am an adorable, blonde, blue-eyed young man. I had Medulloblastoma - cancer. I had a successful resection of my brain tumor, completed six weeks of radiation, 15 months of chemo, and countless surgeries and therapies as the result of treatment effects. These entries journal much of my treatment and progress. I have come a long, long way and I am doing awesome today! Feel free to read and share my story.
Wednesday, September 21, 2011
Tuesday, September 13, 2011
Doing quite well.
It has been so wonderful not getting chemo and making multiple trips to the hospital! Ethan is doing great. Playing tons and catching up a great deal with his education.
He recently went in for his eye appointment and they decided to go through with the hummelshiem surgery. This will bring his right eye to the center so that he can see with both of them at the same time versus alternating them. This surgery is October 3rd. On Thursday, he has another hearing test, so we can find out what his baseline is post chemo. Maybe we'll get lucky and some of the right ear hearing loss has dissipated. Then, in October, he has an appointment with the neurologist who should be able to tell us what nerves are damaged and causing the facial paralysis. Maybe he'll even have some options for recovery there as well (cross your fingers).
Ethan still has multiple therapies a week and home school. It is all going well. Now, if it would just rain...
He recently went in for his eye appointment and they decided to go through with the hummelshiem surgery. This will bring his right eye to the center so that he can see with both of them at the same time versus alternating them. This surgery is October 3rd. On Thursday, he has another hearing test, so we can find out what his baseline is post chemo. Maybe we'll get lucky and some of the right ear hearing loss has dissipated. Then, in October, he has an appointment with the neurologist who should be able to tell us what nerves are damaged and causing the facial paralysis. Maybe he'll even have some options for recovery there as well (cross your fingers).
Ethan still has multiple therapies a week and home school. It is all going well. Now, if it would just rain...
Subscribe to:
Posts (Atom)