About Me

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Hi, I am an adorable, blonde, blue-eyed young man. I had Medulloblastoma - cancer. I had a successful resection of my brain tumor, completed six weeks of radiation, 15 months of chemo, and countless surgeries and therapies as the result of treatment effects. These entries journal much of my treatment and progress. I have come a long, long way and I am doing awesome today! Feel free to read and share my story.

Monday, December 19, 2011

More surgery?

It's been a good month. Busy, but good. We did the neuro testing, iq tests, etc. We are still waiting on the results, but preliminary confirms some real strengths and some weaknesses depending on the area. The doc said his memory is very good, however, and seems unaffected.

We also went in for the plastic surgery appointment and, surprisingly, they seem very interested in facial reanimation. I suspected from my research that it would be too late and extensive to revive nerve damage. However, the military docs in Washington D.C. are interested in his case and have requested his reports and scans. It sounds as though they might fly us to D.C. soon to do some nerve testing and consultations. I'll admit, I was taken aback by their interest. It would be a very complex and involved surgery/process but if it could lead to a smile then it's worth a look. We'll know more after the holidays. I'll be sure to update the site as I hear more.

Tonight we met at the Rainforest Cafe on the Riverwalk to receive Ethan's Make A Wish trip itinerary. We take flight in less than 48 hours! Eeeek, I haven't begun to pack!! We are very excited, of course, and very thankful for the opportunity. Ethan picked a week visit to Disney World. Yay, Christmas with Mickey Mouse! Every young child's dream I'm sure. Anywho, our Make A Wish volunteers, Evette and Faye, were really kind and gracious and we are thankful they were assigned to us.

I suppose this is a short one- I could go in to Ethan's recent developments further, but honestly, I'm too tired and have too much to do. I will report that he continues to do very well. He's getting stronger, eating more, and still making progress bit by bit. Again, I'll be sure to report any news on the facial reanimation.

Happy Holidays and love to all.

<3 <3 <3