About Me

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Hi, I am an adorable, blonde, blue-eyed young man. I had Medulloblastoma - cancer. I had a successful resection of my brain tumor, completed six weeks of radiation, 15 months of chemo, and countless surgeries and therapies as the result of treatment effects. These entries journal much of my treatment and progress. I have come a long, long way and I am doing awesome today! Feel free to read and share my story.

Thursday, February 10, 2011

Getting better...

Went in today for his check up. His peg tube infection is much better. He is also a bit more energetic. His counts are finally on the upward climb, so we don't have to go in for another two weeks unless there is a problem. The only negative is his right eye is really red today. This is a fairly common occurrence for him, but it's a bit more irritated looking than usual. Hopefully, it resolves on its own.

I'll review his overall progress:

-He's still not walking on his own, but is getting better with his walker. I still support him a little when he uses the walker.
-His right eye tracks better than ever, but still doesn't track past mid line to the right. His eyelids still don't fully close at night.
-His right-sided weakness has improved immensely, but the left has taken over as the dominant side.
-Speaks really clearly now, but still can't close his lips all the way. Not much of a delay from thoughts to speech.
-Left side of jaw is clearly stronger than right but seeing improvement on the right.
-No smile yet, but still seeing a little more muscle movement on the left. Plus, he's learned to express a lot with his eyes.
-Coordination overall has much improved.

He is doing really awesome when he feels well. Much has improved, it's really uplifting. Even though the chemo can be tough on him, he always comes through and starts surprising us towards the end of the cycle.

Next chemo cycle starts on March 3rd. It is only a four week cycle. Then, his next MRI is scheduled for March 29th. Somewhere in between those he'll have another hearing test. The last one went well with only a little loss in the right ear.

Today was Brynn's birthday. We've already had cake, ice cream, and presents. We had a lot of fun!

Love to all!!

2 comments:

  1. Wow Nic... So much improvement. Those are all good things considering his beginning diagnosis. I am sure it helps alot when you see growth especially when you have to watch all setbacks and side effects. You are amazing and I am sure he knows it! Prayers are said every night for you guys. They have become part of my nightly prayers for my loved ones. Tell Brynn happy happy birthday. I am glad to hear it was a good day for her and the family! Love you. Miss you. Les xoxo

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  2. Thank you as always for keep us updated. Thrilled with his continued progress and still amazed by this journey. You are all so strong. Happy birthday to beautiful little lady Brynn. Send some pics. Wishing for continued leaps forward. Love and miss you so, so much. Give my love to all xoxox
    Auntie Diana

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